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Balancing Life's Tough Times
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Memorials
| The following are Families of SMA-WI Chapter "SMA Angels". |
Rebecca "Becky" Diels
April 7, 1978- October 26, 2006
Rebecca lived with type I/II SMA (spinal muscular atrophy)
that challenged her physically, but not mentally. She did not
require an able body to live life. In fact, Rebecca was
currently attending college and taking courses in web design,
and was well on her way to starting her own web design
business. We remember Rebecca as a kind, compassionate,
flirtatious young woman with a fiery spirit and a brilliant
mind. She had a passion for the arts—poetry, writing,
graphic design, music, theater and film. Beck had a great
sense of humor, calling herself, “a tad sarcastic,” and
referring to her stomach tube as a “belly piercing.” Rebecca
had strong opinions and made it clear that she, and any
other physically challenged person, deserved respect and the
ability to make their own decisions about health care and
daily living. Her hope was to educate the ignorant—she was
disappointed in the lack of interest in Spinal Muscular
Atrophy and went to great lengths to change this. Beck has
dedicated the past several years of her life to connecting
those afflicted with SMA by creating an SMA friends list that
currently has over 400 members. They now have a forum to,
in her own words, “chat, laugh, learn, cry, relate, and help,”
which will continue forever in her memory. Beck also helped
organize SMA fund raising events, and was vice president of
the Wisconsin chapter of Families of Spinal Muscular Atrophy.
April 7, 1978- October 26, 2006
Rebecca lived with type I/II SMA (spinal muscular atrophy)
that challenged her physically, but not mentally. She did not
require an able body to live life. In fact, Rebecca was
currently attending college and taking courses in web design,
and was well on her way to starting her own web design
business. We remember Rebecca as a kind, compassionate,
flirtatious young woman with a fiery spirit and a brilliant
mind. She had a passion for the arts—poetry, writing,
graphic design, music, theater and film. Beck had a great
sense of humor, calling herself, “a tad sarcastic,” and
referring to her stomach tube as a “belly piercing.” Rebecca
had strong opinions and made it clear that she, and any
other physically challenged person, deserved respect and the
ability to make their own decisions about health care and
daily living. Her hope was to educate the ignorant—she was
disappointed in the lack of interest in Spinal Muscular
Atrophy and went to great lengths to change this. Beck has
dedicated the past several years of her life to connecting
those afflicted with SMA by creating an SMA friends list that
currently has over 400 members. They now have a forum to,
in her own words, “chat, laugh, learn, cry, relate, and help,”
which will continue forever in her memory. Beck also helped
organize SMA fund raising events, and was vice president of
the Wisconsin chapter of Families of Spinal Muscular Atrophy.
*excerpt from Becky's Obituary in the
Madison State Journal, written by Phil Brinkman*
To view some of Becky's Artistic abilities, click
on any of the following links:
Becky's SMA Awareness Quilt Square
on any of the following links:
Becky's SMA Awareness Quilt Square
To have an "SMA Angel" added to this memorial page, please submit any photo's or
information to:
info@sma-wisconsin.org
Please be sure to include approval, for Families of SMA-WI Chapter, to publish the information
on our website.
information to:
info@sma-wisconsin.org
Please be sure to include approval, for Families of SMA-WI Chapter, to publish the information
on our website.
Families of SMA- Wisconsin Chapter
